9/19/19 10:30AM - Appointment with Boston IVF in Quincy. Met with the doctor and he says how sorry he is. Says this is really rare. We were down to a 5% risk of miscarriage. Says that 70% of miscarriages are due to chromosomal abnormalities. Since we had opted to do PGS testing...we know that wasn't the cause. So...he recommends the recurrent miscarriage panel. Good! I was going in to this appointment ready to fight for that testing. Happy that I didn't need to argue...too mentally exhausted! We have only had one miscarriage but this testing may give us valuable information to prevent another. He says that if 70% are due to chromosomal issues, 25% will be figured out by this testing but 5% they just don't know.
I get a pregnancy hormone test done (we can't do the miscarriage panel until my body doesn't think I am pregnant)
My husband gets his bloodwork done for the panel
9/19/19 1:30pm - Met with the Reproductive Endocrinologist (the pregnancy doctor) to discuss the miscarriage and next pregnancy Said that we didn't do anything wrong. Said there was no reason for this. I went over the bloodwork I was going to have for the miscarriage panel and she added some other tests related to my thyroid etc. She was surprised that they hadn't karyotyped our chromosomes previously. Discussed my A1C and how she wants it to be around 5-5.5%. Pissed me off - my endocrinologist disagrees. Got a VM from someone later that my goal should be under 6.5%. They were not able to get genetic results from the fetal tissue. Would have been more likely if we has done the D&C. TTC after miscarriage -
We will not go to the introductory meeting at the RE (don't drink, continue to take methadone if needed! HA)
We will not have another consult with MFM specialist
We will have an ultrasound at every appointment until I feel comfortable...they said usually when you start to feel the baby move. If I am nervous at any point, I call and they will get me right in for an ultrasound.
10 week appt. (internal)
12 week appt. etc. (external)
9/20/19 - Got a call that my body still believes its pregnant but barely only 2.2 was the result. Have to wait a full week before redoing the test. 9/26/19 - Redo beta test. Heard that evening that it is negative. Whew! 9/27/19 - Full recurrent miscarriage panel (about 7 vials of bloodwork) 9/27/19-10/17/19 - Wait for results and appt to discuss. Angry that they don't do this testing prior to starting IVF! 10/17/19 - Phone appointment with doctor to discuss results...He was over an hour late for the appointment...but at least he called. All results came back normal. So they weren't able to find any clotting issues and our chromosomes are compatible with life...which is all well and good. However, it gives us no indication as to why we had a pregnancy loss. No indication as to how to prevent it from happening again...
So we have two options moving forward: 1. Same protocol as before. In terms of fertility treatments - we were successful. Doctor said there is no reason to think that next time will be any less successful. 2. Add in Lovonox (injectable blood thinner) for the first trimester. There is no scientific reason for this. However, the doctor said they don' know everything and that it may be helpful and it wont hurt...except it really will hurt - its a needle a day.
I tell him to plan on option 2 but that we will discuss it and I will let him know if we change our minds. Send it to insurance and get the meds ordered. Plan to do a FET in November.
10/22 - Get bill for husbands blood work for the panel ($1200 but the contracted rate is $270) Goes towards our deductible so I call on 10/23 and pay using our FSA card. Wish they told us when things went on the deductible. Whatever - we were going to do the test either way. I will have no bill (I go through my deductible in July every year. Called insurance to make sure we should pay this first (always call to check).
Expected Day 1 of period 10/31. Need to call on Day 1.